Over the course of 20 years at the Institute for Community Inclusion, I have had leadership roles in projects related to family engagement, transition, and employment for individuals with intellectual and developmental disabilities (IDD) in particular, making me well suited as Principal Investigator on the current application. I have developed expertise in research and evaluation of transition practices as it relates to employment, post-secondary education, and community life engagement for youth with IDD. I am currently Co-PI on a 4-year research project exploring transfer-of-rights and guardianship for transition aged youth with IDD funded by the Institute of Education Sciences, as well as Co-PI on a 5-year National Youth Resource Center on Alternatives to Guardianship funded by the Administration on Community Living. I recently acted as Principal Investigator on two lines of research as part of ICI’s Rehabilitation Research and Training Center on Advancing Employment for Individuals with Intellectual and Developmental Disabilities. One is related to organizational transformation of employment support providers seeking to close their sheltered workshops and the other involves research around the creation of a comprehensive information, outreach, and support framework for parents of youth with IDD that enables ready and timely access to information about employment throughout the lifespan. My research interests stem from my background providing direct services to families with children with disabilities, autism spectrum disorders, and special health care needs.
As national disability policy prioritizes greater support for community-based integrated employment for individuals with intellectual and developmental disabilities (IDD), the level of participation in services for other daytime activities continues to grow (Winsor & Butterworth, 2012). The role of services related to engagement and participation in community life has to date been largely undefined.